This is what I looked like a couple days after surgery.
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And the following picture was taken on 11/12/09 at the request of this post's followers
The top line was the incision to remove the cyst. The bottom line is a dimple caused by the drain that was put in right there.
First Day of School 2009 (for Toki)
So here's the big day.
Last year it was Toki that looked beat up. This year it was me. What a first day of school impression we make. Any guesses who's it gonna be next year? These little fellows were so excited to be in the same class together again. Two years of preschool and kindergarten, not to mention the same soccer team the last couple of years....I hope they don't get sick of each other.
Fetal Position
And this is what you might look like when tending to 3 super active, lovable, frustrating boys and a wife who can be as equally difficult and has had a
thyroglossal duct cyst removed. Is that a knife I see? Needless to say it has been a rough week for someone else besides myself. He did eat like a King thanks to the Relief Society. What a huge help those dinners were.
And so here is the picture that freaked me out. During a week at Jackson Hole back in July I noticed this lump in my neck when scrolling through my digital camera. I looked in the mirror and sure enough there it was. That would explain the discomfort in swallowing that I had been having that week. I played it off as fatigue and a continuation of symptoms after chocking on a chip the weekend before. It never occurred to me that something might be growing inside me. The second I saw it my stomach dropped. Scary thoughts came into my mind and I couldn't talk to anyone about it. I finally got the gumption to tell Chris and I felt better afterwards for a little while.
That Monday I saw a random family practitioner I'd never met before. After 20 seconds of seeing me he said, "sorry can't help you. This is for an ear, nose, and throat doctor. The receptionist will help you get connected with one." Gee thanks? That was helpful. Can I have my copay back? I was a bit disappointed with that meeting but later would be thankful because they led me to one of the best doctors in this field and if you are in need of an amazing Ear, Nose and throat doctor/plastic surgeon whose specialties include cancer of those areas, I'll be more than happy to give you the name of one that comes highly recommended and who did not paralyze my face or vocal chords in surgery. Side note.....don't talk to people before surgery who are eager to tell you about their neighbor who had neck surgery and lost the ability to blink or move one side of their face.....who does that?
The initial diagnosis was this thyroglossal duct cyst. It is rarely a malignant tumor. I had three doctors guess it was that from the CT and MRI that was done. Even the MRI tech. said it was cystic in nature. But regardless, I was fretting the entire time until I met with my surgeon yesterday and received the results of the biopsy. It confirmed that in fact it was a cyst and just that. Mine however, had grown into the vocal chords and my doctor who originally said that it didn't need to be removed right away or ever if I choose, said he was glad we took it out. And left it at that. The entire duct was removed. It was attached to the base of my tongue, which would explain the pain/discomfort that I feel involving my tongue, to my thyroid at the base of my neck. The part of the hyoid bone that the cyst was attached to was removed and more muscle and tissue had to be manipulated to get back into my voice box in order to get the rest of the cyst out. Most people do not have a thyroglossal duct since it usually disappears at birth. For some, like in my case, it does not disappear and poses this congenital risk.
What to Expect After Surgery (Sistrunk Procedure, removal of thyroglossal duct cyst)And for those who have done an internet search for this type of cyst and surgery and found hardly any personal experiences on what to expect, which is what I found, I write this section for.
I stayed over night at the hospital. For many it is same day surgery. But since mine was a little more extensive and had a drain, I was admitted.
When the doc. says 1-2 week recovery and adds nothing to that, he probably just doesn't want you to worry more than necessary.
I however would add that it feels like someone has slugged you in the neck several times and warn you to be on top of your pain medications. I had no idea what to expect and have practically no experience with pain meds. including for the post delivery of my babies. I didn't think to ask for pain meds and the nurse who attended me did not have any experience with patients like myself and didn't offer me any or educate me on the different choices I had. In the wee hours of the morning I finally asked for some Tylenol. And stupid us didn't realize I was going to choke on it. Hello, duh? My neck and throat were swollen and constricted. But I wasn't in my right mind to have thought I would have problems swallowing things and he left me to choke on these large pills. I finally worked them down but not before doing some damage. I began bleeding for the next few hours, my neck swelled up even more which caused me to not be able to talk anymore, and it was hard to breath. So I highly recommend that you discuss pain meds. with your attending nurse. Something liquid or able to be administered by I.V. at regular intervals for the next couple days.
Luckily the extreme pain only lasts for a day or two and it goes down dramatically after that and I stopped taking pain meds. after only a day in a half.
I had to sleep sitting up for a few nights. My salivary glands were in overdrive and I would choke if I was leaning back. It was really hard to swallow and for much of the time I was spitting everything out. After a few days I could sleep in more of a reclined position.
It still hurts to swallow, laugh, cough, sneeze, and yawn. Icing helps. Ibuprofen helps.
I feel dizzy. It's slowly going away.
The first couple days my sense of smell was also in overdrive. Everyone smelled and it could not be helped.
I noticed someone did a search on eating after a sistrunk procedure.
As far as what to eat.....rice in broth, soft foods such as mandarin oranges, anything soft and chopped up, as long as you're on pain meds. you can probably eat quite a bit. After getting off of those in a couple of days just stay away from chips, popcorn, hard candies, pretty much anything you wouldn't give a toddler and poses a choking risk. Which may happen anyways....at least for me I was choking quite a bit even on water.
So you may expect a painful first couple of days and a few very difficult nights, then quite a bit of easing up after that. Every day gets better. It's been a week for me and today is nothing like that first night. Still have a week to go I think.
Let me know if that helped or if you have any questions. I like to be helpful even if it means sharing gross things.